Rough Day

Trey having an EKG.  Not too fun.

Today ended up being a really rough day for all of us. It started at 4 am when Trey woke up and said that his chest hurt. It felt like a sharp pain near the central line in his chest. So the nurses listened to him and put him on a heart monitor. Then they did an EKG on him and also did chest x-rays all before 5:30 am. What a way to start the morning! Come to find out that the needle in the line was placed a little too deep and needed to be pulled up. So they scheduled a surgery for sometime today. Trey was very scared because he didn't want to be awake when it happened. He doesn't like needles. He was worried that he'd have to get poked with a needle. He's had so many of them already. He told me "I just don't want to keep getting pokes". It broke my heart and I wanted to cry for him. He perked up a bit when we told him he wouldn't get poked because they would just put him to sleep like before. Since there was a mix up with the central line being placed instead of a port to begin with, they said they'd just replace it with the port. We were glad to hear about that. Trey was then put on NPO which means no food or drink until after the surgery.

All day long while we waited to hear news about when he'd go in for the surgery, Shane and I were inundated with many departments coming in and wanting to chat with us about different things. We had the social worker, the outpatient treatment care, the nutritionist, a Chaplin, plus our doctor came in to talk with us and to check on Trey. Not that we didn't appreciate all of this, it just got to be almost too much information for us to take in. Kate and Eric came to visit, which was a nice break from all the hustle and bustle of the day.

It got to be later and later and we still hadn't heard about the surgery time. Poor Trey had no food or drink for so long. He kept saying "my mouth feels like a desert". Finally we heard back and they started him on the platelets transfusion. His platelets count has been very low and since he was going in for surgery, they needed them to be higher. He had that done before on his first surgery too. About 6:30 pm he went back and Shane and I waited once again. It took about and hour and a half for Trey to be ready to come back to his room. Our sweet Bishop and his wife were there to greet us and offer their support. We are so grateful for their visit. We had been feeling pretty postitive most of the day, tired, but our spirits were up until Trey got out of surgery.

Trey continued to have a rough night. He threw up again (he threw up a couple days ago) and he looked so pale and sick. He could hardly talk. The nurses, although they were doing their job and they needed to, were working over Trey, taking vitals, poking and proding (although not with needles) etc. They thought they were hearing a clicking sound where the port was. So we had all kinds of nurses and resident doctors come in to check him out. All through this Trey just kept saying he was tired and wanted to sleep. He just looked miserable and he was hurting. I couldn't take it and I had to leave the room for a breakdown moment. So much for my positive attitude. It's really hard to see your child suffer like this. It has been a long day and I am glad it is over. Tommorrow should be a quieter day.