Update

It's been quite awhile since I've updated this blog.  Life just keeps buzzing by so fast.  This is just a quick update.  Trey has been doing so great.   A few months ago though, he came down with a fever and I took him into Primary Children's.  They took us back into the ER right away.  They started him on fluids and an antibiotic.  I thought we might get to go home that night, but his blood pressure started to elevate.  He started to get really shaky and cold.  I got concerned and had the nurses look at him again.  It came on so suddenly.  I actually started to get scared.  After talking with the oncology department, the ER dr. said we were going to get admitted.  So after being in the ER for about 5 hours we headed upstairs to the 4th floor.  Trey was in the hospital for 2 days.  Not too bad.  He started feeling a lot better by the next day and his temp went down so they let us go home.  They ran some tests to make sure the infection didn't affect his port.  If an infection gets into his port it can be really really bad.  The Dr. took him off all his chemo meds for a few weeks.  Then as his counts went up they started him back on a low dose.  Now after a few months, they have continued to increase his medication.  He isn't on as much as he was before he went into the hospital.  I hope he doesn't have to take that much again.  It was a lot of chemo. Each time he goes in for his Dr. visits, Dr. Barnette says how great Trey is doing.  He's amazed that Trey doesn't experience more side affects since he has been on such high dosage amounts.  He says it's great that he doesn't have the side affects. His body is able to tolerate the medication.  I will be excited when he is done....March 2013! 

School has started and he is in 6th grade.  Top Dog in his school.  :) He's doing great and learning lots.  He is working hard in Boy Scouts and working towards earning his Eagle in the future.  He also loves football and will be going to a BYU game Oct. 13th.  BYU vs Oregon State.  He's really excited. GO BYU!!!  He has been trying to convince me to let him play tackle football next year.  I've been hesitant, but then he started  running  a couple miles a day and wants to eat healthier so he can be fit to play football.  Maybe I'll have to let him try....

I'll post some photos soon.  Next spinal tap is this month.  I think he will only have one more after that.  Yeah!  We are almost done.  I can't believe it is almost over.  We continue to feel blessed and appreciate the love of our family and friends.