Update

It's been quite awhile since I've updated this blog.  Life just keeps buzzing by so fast.  This is just a quick update.  Trey has been doing so great.   A few months ago though, he came down with a fever and I took him into Primary Children's.  They took us back into the ER right away.  They started him on fluids and an antibiotic.  I thought we might get to go home that night, but his blood pressure started to elevate.  He started to get really shaky and cold.  I got concerned and had the nurses look at him again.  It came on so suddenly.  I actually started to get scared.  After talking with the oncology department, the ER dr. said we were going to get admitted.  So after being in the ER for about 5 hours we headed upstairs to the 4th floor.  Trey was in the hospital for 2 days.  Not too bad.  He started feeling a lot better by the next day and his temp went down so they let us go home.  They ran some tests to make sure the infection didn't affect his port.  If an infection gets into his port it can be really really bad.  The Dr. took him off all his chemo meds for a few weeks.  Then as his counts went up they started him back on a low dose.  Now after a few months, they have continued to increase his medication.  He isn't on as much as he was before he went into the hospital.  I hope he doesn't have to take that much again.  It was a lot of chemo. Each time he goes in for his Dr. visits, Dr. Barnette says how great Trey is doing.  He's amazed that Trey doesn't experience more side affects since he has been on such high dosage amounts.  He says it's great that he doesn't have the side affects. His body is able to tolerate the medication.  I will be excited when he is done....March 2013! 

School has started and he is in 6th grade.  Top Dog in his school.  :) He's doing great and learning lots.  He is working hard in Boy Scouts and working towards earning his Eagle in the future.  He also loves football and will be going to a BYU game Oct. 13th.  BYU vs Oregon State.  He's really excited. GO BYU!!!  He has been trying to convince me to let him play tackle football next year.  I've been hesitant, but then he started  running  a couple miles a day and wants to eat healthier so he can be fit to play football.  Maybe I'll have to let him try....

I'll post some photos soon.  Next spinal tap is this month.  I think he will only have one more after that.  Yeah!  We are almost done.  I can't believe it is almost over.  We continue to feel blessed and appreciate the love of our family and friends.

Family Photos Nov 2011

Some updated family photos. My brother-in-law took them for us and did a great job. Thanks Rob!

Overdue Update

It's been a while since an update...but here it is. I've attached some pictures. They are out of order, but oh well.


Trey at his Cub Scouts Pine Wood Derby in Nov. They had a lot of fun. Look at their anticipation!

Christmas Day. We had a nice and quiet Christmas. Tiana's first Christmas. We had a fun day.

Christmas Eve we went to Temple Square in Salt Lake City to see the lights. It was sooooo COLD! We had to leave early because some of us were freezing. This picture turned out blurry for some reason. Next year we will try it again...

Halloween Fun! The kids all dressed up except for Skyler. Trey is hidden behind the mask. They all had fun going door to door for treats.

(First day of school. He wasn't happy with me for taking his picture...but I'm his mom, so of course I have to catch every milestone on camera. Who can blame me? ;) )

Trey started the 5th grade back in Aug. He's doing great. He's right where he should be in all his subjects. Earlier this year his class was learning the states, where they are and how to spell them, plus all the capitals. Trey was bound and determined to get them all correct...and he did! I was so proud of his hard work.

Trey received his Weblos award in Cub Scouts. He has worked hard to achieve this. He will also receive his Arrow of Light next month. We are very proud of him for his dedication.

His chemo treatments have been going well. He continues to brave the hospital visits once a month. We are on the count down now. Only 13 more months left to go! AND only 4 more LPs to go. Lately he's had a few restless nights. Don't know if its medication related or just growing pains. Trey's knees and legs have been giving him a rough time. The doctor said to just watch the pain in his knees. They attribute it to the steroids he is on.

This last visit in Feb. turned out to be harder on him then expected. He had an LP and the doctor seemed to have a harder time with it initially. Then when she was administering the chemo at the end, the syringe popped out and some chemo splattered everywhere. That was a bit unnerving. They were quick to go through the procedure of cleaning it up. Luckily they cleaned it up off of Trey before it became a chemical burn on his back. One funny thing though was when Trey was under and just coming out of the anesthesia, he informed me that we have Ninja blood in our family. I said, "Oh really, how do you know that?" He said, "Because I'm ninja of course!" We had a good laugh!

Afterwards, Trey and I met up with Dad to go out to lunch. Usually this is a fun tradition we have with Trey, but his eyes were hurting so much, that he couldn't enjoy it. We took him home and for the last 6 days he's been laying down with his back hurting and his eyes hurting. I called and the nurses say that it is not uncommon for the "eyes" to hurt. They think it is a severe migraine. Trey has been sensitive to light and whenever he stands up he gets dizzy and needs to lay back down. At one time he told me he wanted an eye transplant. I feel so bad for him. Today he seems to be doing a bit better. We hope he'll be back to school on Tuesday. The nurses said this could last up to 7 days. We are at the tail end of it.

He continues to play football with his buddies at recess and outside in our front yard. He loves, loves, loves football and has been trying to convince me to let him play tackle football. I'm not convinced yet. Maybe, just maybe next year after his port is taken out. I guess I just worry too much. :)

Well that is my update. Overall Trey has been doing great. We continue to feel the Savior's love. I know He watches over my family. I want to thank those that continue to place Trey's name on the Temple Prayer Rolls. I have a testimony of prayer and I know He listens and hears our prayers.